好好照顾玛雅：虐儿案罗生门（2023）

so they had to give her extra ketamine
‎今天是昏迷第六天 2015年11月22日
This is coma day six, 11-22-15
‎我爱你 玛雅
I love you, Maya
‎爸爸爱你 凯尔爱你 科琳爱你
Daddy loves you. Kyle loves you. Corinne loves you
‎每个人都爱你
Everybody loves you
‎不！不 不 不
No! No, no, no, no
把那个放在外面 别拿起来
Keep that… Keep that on. Don't lift that
‎-妈妈！ ‎-嗯 妈妈就在这里
Mommy! -Yes, Mommy's right here
‎喂
Hey
‎-我就在这里 ‎-妈妈 有怪物
I'm right here. -Mommy, monster, monster, monster…
‎没有怪物 妈妈在这儿 ‎妈妈不是怪物 好吗？
No monsters. Mommy's here, and Mommy's not a monster, okay?
‎（氯♥胺♥酮♥昏迷第六天 ‎2015年11月22日）
‎玛雅 记得我们要问你一些问题吗？
Maya, remember… remember we were gonna ask you some questions?
‎你妈妈想问你一些问题 好吗？
Your mom wants to ask you some questions, okay?
‎-好 ‎-好 别碰你的眼镜
Yes. -Okay, don't touch your glasses
‎-好 妈妈？ ‎-嗯？
Okay, Mom? -Yes?
‎-你好 玛雅 ‎-嗯？
Hello, Maya. -Yes?
‎-是妈妈 你记得妈妈吗？ ‎-记得
It's Mommy. You remember Mommy? -Yes
‎好 很好
Yes. -Okay, good
‎-你弟弟叫什么名字？ ‎-凯尔
Who… Uh, what's the name of your brother? -Kylie
‎好女孩！
Good girl! -Wow!
‎所以她情况不错 她可以扭动了
So she's doing fairly well, and she, um… She's got the wiggles
‎这不是意料之外的 ‎我会说她没有任何有害的幻觉
That's not unexpected, and I would say she hasn't had any adverse hallucinations
‎-你同意吗？ ‎-我同意
Would you agree? -I agree with that
‎好 所以 玛雅 问你一个问题
All right. So, Maya, here's one question
‎-准备好了吗？ ‎-是的
Are you ready? -Yes
‎给我看看这个手势 玛雅
Show me the sign, Maya
‎-给我看看这个手势 ‎-这个
Show me the sign. -This
‎很好！喂！
There you go! Hey! She's got it
‎她可以
She's got it. She's got it!
‎玛雅从昏迷中苏醒了 ‎她好一些了
Maya came out of the coma, and she was better
‎她说她饿了 听到这句话 我如释重负
She said she was hungry, which was… a huge relief to hear
‎昏迷疗法起作用了
The coma worked
‎氯♥胺♥酮♥对我的疼痛有很大的帮助
The ketamine helped me tremendously with my pain
‎我有一点短期记忆丢失
I had a little bit of short-term memory loss
‎有时候我的视力变得很模糊
and sometimes things were really blurry with my vision
‎但是如果能整体帮助我
but I was willing to have those side effects
‎我愿意有这些副作用
if it was gonna help me overall
‎好吧 玛雅 现在是1月6日
Okay, Maya. It's, uh, now January 6
你做过了氯♥胺♥酮♥昏迷治疗
and you had your ketamine coma
‎现在经历了这一切 你觉得值得吗？
Now, having been through all that, is… was it worth it?
‎-是的 ‎-有很大帮助
Yes. -Helped a lot
‎如果我理解正确的话 ‎尤其对头痛有帮助
Especially with the headaches?
‎- 对，她的头痛好了很多
Yes, her headaches are a lot better
‎‎-对 -头痛很轻了
Yep. -They're minor now
‎-好 ‎-好的
Yeah. -Right
‎-她的腿痛好多了 ‎-对
Her pain in the legs is better. -Right
‎所以 对
It's getting-- -So… yeah
‎-对… ‎-一切都在变好
Right-- -It's all better
‎我们对你做一些检测吧 玛雅 ‎你准备好了吗？
Let's do some testing, Maya. Are you ready for that?
‎举起你的右手 放在你的头后面
Take that right hand, put it behind your head
‎以前你绝对做不到这样 ‎当你这样的时候有任何疼痛吗？
You couldn't do that, no way, before. Any pain when you do that?
‎不太痛 没有
Not really, no
‎不太痛 好 现在来尝试另一边
Not really, okay. Now do the other side, please
‎-这次也是 你以前做不到 ‎-确实
Again, you couldn't do that before. -No
‎我们讨论过那有多重要…
And we talked about how important it is…
‎当我们从墨西哥回来
When we got back from Mexico
‎我们无法负担得起 ‎继续柯帕里克医生的治疗
we couldn't afford to keep up with Dr. Kirkpatrick's treatments
‎所以他推荐了 ‎接受我们保险的同事 汉纳医生
so he recommended his colleague Dr. Hanna, who took our insurance
‎为玛雅开了低剂量的氯♥胺♥酮♥
and prescribed low dosages of ketamine for Maya
‎这样好多了 我爱你
That's better. I love you
‎我也爱你
I love you too
‎现在慢慢下来
Now go down slowly
‎她越来越有力量了
She was getting stronger
‎肌张力障碍痊愈了
The dystonia was straightening out. -Now smile. Good
‎她无法控制她的腿 ‎但她的胳膊可以控制
She was unable to use her legs, but she was using her arms
‎她状况非常、非常好
and she was doing very, very well
‎我确定这样做了之后 玛雅今晚
I'm sure Maya's gonna need two doses of ketamine tonight after this
‎会需要两倍剂量的氯♥胺♥酮♥
‎她回学校了 欢笑、玩耍
She went back to school, to laughing and playing
‎我们觉得很幸运 最终看到了疗效
We were blessed that we'd finally seen something working
‎一年内是有效的
And for a year, it did
‎直到那个飓风之夜
Until the night of the hurricane
‎（2016年10月7日）
‎一小时前情况很糟糕
Conditions were bad an hour ago
‎现在随着飓风“马修” ‎在佛罗里达东海岸登陆
They've gotten worse now as Hurricane Matthew
‎情况变得更糟了
makes its way up the east coast of Florida
‎桥被封闭了
Bridges are closed
‎人们被告知无论在哪里 ‎留在原地躲避
People have been told, wherever you are, hunker down
‎现在去外面太危险了
It is too dangerous now to go outside
‎玛雅复发了
Maya relapsed
‎病发作了 而且非常严重
It came back, and it was very severe
‎她开始抱怨肚子痛
She started complaining of pain in her tummy
‎痛到了她尖叫哭泣
And it got to the point where she was screaming and crying
‎乞求帮助的程度
and begging for help
‎我联♥系♥了正在工作的贝亚特
I contacted Beata at work
‎好的 等一下 让我靠边停车
Okay, hold on. Let me pull over to the side
‎我告诉她“我必须把她带到急诊室”
And I told her, "I have to take her into the emergency room."
‎我记得在门口停车
I remember pulling up at the doors
‎进行分类诊断
Go to triage
‎然后你又被问到相同的问题
and then you get the same questions again
‎第一个分诊的护士不知道 ‎复杂性区域疼痛综合征是什么
The first nurse in triage had no idea what CRPS was
‎然后其他人也一样
And then the other ones as well
‎他们想要信息 问我
they wanted information and asked
‎就在这时我给我老婆打了电♥话♥ ‎然后她和医生说
That's when I got my wife on the phone, and she talked to the doctor
‎止痛药是低剂量的纳曲酮
The pain meds are low-dose naltrexone
‎还有氯♥胺♥酮♥ 口服 ‎她的医生开的药方
and ketamine, oral, prescribed by her doctor
‎她关注的只是注射氯♥胺♥酮♥
Her concern was merely administering ketamine
‎一遍又一遍 越来越多
over and over, more and more and more
‎贝亚特一小时后来了
Beata shows up an hour later
‎她很挑衅 要求很高
She was belligerent, demanding
‎那位母亲非常喜欢控制局面
The mom was very controlling
‎她告诉我 ‎“这就是你要做的事情”
She told me, "This is what you're going to do."
‎贝亚特在给他们解释
Beata's explaining to them
‎这就是治疗这个病所需要做的
this is what needs to be done for the disease
‎你不了解她的医学诊断
You don't understand her medical diagnosis
‎你不知道要用多少药 ‎来控制她的疼痛
You don't understand how much medication it takes to control her pain
‎但是他们就是不明白
But they just didn't understand
‎会有呼吸衰竭、心脏停搏的风险
There are risks of respiratory failure, cardiac arrest
‎她的女儿可能因此而死
Her daughter could die from this
‎她似乎并不担心 女儿会因此而死
and it didn't seem that she was, you know, worried about that
‎现在回到2016年10月7日 你去
Going back now to when you came to Johns Hopkins All Children's Hospital
‎约翰·霍普金斯儿童医院的时候
on October 7 of 2016
‎你记得那天吗？
Do you remember that day?
‎我觉得我记不清确切的那一天了
I don't think I remember that exact day
‎但我确实记得 ‎我在约翰·霍普金斯医院最初的住院
but I do remember the very beginning of my stay at Johns Hopkins
‎我记得我当时很痛苦
I remember I was in a great deal of pain
‎你胃痛还是脚痛？
Was the pain in your stomach or foot?
‎你的全身都痛吗？
Was it all throughout your body?
‎主要是我的胃痛 我被送去了急诊室
My stomach, mainly. I was sent to the ER
‎之后 我被转到了儿童重症监护室 ‎或者不管那叫什么
After that, I was transferred to the PICU, or whatever that was called
‎特护病房♥之类的
the intensive care unit or something
‎我基本就只记得这些了
That's most of what I remember
‎他们开始给玛雅注射低剂量的氯♥胺♥酮♥
They started Maya on low-dose ketamine
但那没起作用
but that wasn't working
‎随着时间的流逝 我们不觉得 ‎我们对玛雅的状况有任何效果
As the days progressed, we did not feel we made any effect to Maya's status
‎我们开始怀疑 ‎复杂性区域疼痛综合征的诊断
We began questioning the diagnosis of complex generalized pain syndrome
‎贝亚特知道低剂量不会奏效
Beata knew that low dosage wouldn't… wouldn't do it
‎但他们不听
But they didn't listen
‎这时候 事情开始变成双方交战
At this time, things started to become belligerent
‎事情开始变成谈论要离开医院
Things started becoming talks of leaving the hospital
‎这时候我开始感觉玛雅不安全
That's where I started feeling unsafe about Maya